Open Inclusion's Privacy Policy

Version number: v2.1

Effective date: 25 June 2024

In this Privacy Policy

Introduction

Open Inclusion is a global inclusive research agency that positively addresses disability and age-inclusion through broader and deeper authentic insights, participatory design and inclusive innovation. 

Open Inclusion Limited (Open Inclusion) is incorporated and registered in England and Wales with company number 09394123 and our registered office is at 86-90 Paul Street, London, EC2A 4NE

We are committed to protecting your privacy when engaging in our research or using our products and services such as our website or community engagement platform. 

On this page, you can find information about how we manage any data that we receive from you to keep it safe. 

We understand how important this is and want to assure you that we take your data privacy seriously throughout the management of it so that we collect, store and use it securely and safely.

The following describes how we handle personal data provided to us by, 

 

This policy is applicable worldwide.

Open is committed to fostering a culture of transparency and accountability by demonstrating compliance with the principles set out in the General Data Protection Regulation (GDPR) across all regions that we operate.

In addition, all research that we carry out is compliant with the Market Research Society’s Code of Conduct.  

Any personal information you provide to Open Inclusion through research or when using one of our digital assets will only be used in the ways described in this privacy policy. 

This policy may be updated from time to time so please check back periodically to ensure you are happy with any changes. If you have any questions about this policy, please contact us or email contact@openinclusion.com. 

This policy covers our website and community platform

For both our website and the community platform we may collect the following user information  to help us present timely and relevant information to our visitors or aggregated and used to understand and continue to improve the experiences on our website and community platform.

  • Internet Protocol addresses (IP)
  • Types of browser
  • Internet Service Provider (ISP)
  • Date and time stamp
  • Referring and exit pages
  • Number of clicks
  • Location of user

 

This policy also includes

  • Information you choose to share on the community platform

 

If you participate in an Open Inclusion community discussion forum or community chat rooms, please be aware that the information you provide will be made broadly available to others within the community who have access to this content. Please only share information as you would on any other social media platform.

Open’s community platform has its own community terms and conditions. Each participant’s opinion when engaging on the community platform is their own and should not be considered as reflecting the opinion of Open Inclusion.

This policy also covers research conducted by Open Inclusion

Open Inclusion’s primary purpose is to conduct research to understand the experiences and perspectives of disabled and older individuals.

We do this to inform better solutions and more useful innovations that work effectively and provide value for more people. 

In order to explore complex challenges, identify opportunities and understand the authentic diversity of experiences we need to ask you to share personal details and experiences.

Personal data we may collect

If you join our Open Inclusion Insight Community you can be offered a range of research over time suited to your preferences and where you meet the specified criteria for the research, such as the region that you live. You always have the option to opt out of any such invitation. 

If you engage in a specific piece of research with us you may be asked to share relevant personally identifiable information to express your interest in the research and then in the research itself. 

The information we collect from people joining our Open Inclusion Insight Community or engaging in research will include a wide range of personal information about you including sensitive and protected characteristics such as:

  • full name
  • year of birth or age 
  • gender
  • disability/ies, access needs and assistive technology usage
  • educational background or occupation  
  • ethnicity 
  • contact data including your email address, address and phone number  
  • payment preferences and information (to make payments to you);
  • what kinds of research you would like to be invited to
  • your opinions, preferences and experiences as relevant to specific research topics
  • image and/or voice captured through video, photography or audio recording 
  • other information you would like us to share with you such as newsletters

 

In addition, we may sometimes ask for additional personal data, such as your household composition or employment status, that are specifically relevant to a research project. Where we do so we always obtain your explicit consent and tell you why and how the information will be used. It is always your choice to reject or accept any request for additional information. You are never required to engage in any research opportunity.  

How we use and store your data

All information you provide to us is collected and handled in accordance with the General Data Protection Regulation (GDPR). This ensures the protection of your personal data and privacy of our web visitors and community participants. 

The information we hold is stored in secure servers in the United Kingdom and the United States. To prevent unauthorised disclosure or access to your information, we have implemented strong physical and electronic security safeguards.

Information collected when you are using the website and community platform may be used to:

  • provide a customised website experience for you
  • contact you in response to a specific enquiry or request
  • evaluate and improve the products and services we provide
  • meet statistical and internal reporting requirements

 

Information collected in research and community member registration may be used to:

  • ensure that we select participants for research who represent a balance of perspectives 
  • invite you to research that suits you
  • plan and conduct research with you  
  • understand the experiences you have shared of a product, service or environment in relation to your personal characteristics or specific contexts of use  
  • communicate with you in line with your needs and preferences
  • pay you as agreed as a practical thank you for your time and engagement
  • share information about the work you or other community members have been involved in, such as in a newsletter or presentation of the research findings to those involved


You can choose whether or not to provide personal data to Open Inclusion. However, please note that you may be unable to conduct certain research, or access certain opportunities if personal data has not been provided, and where it is required for such opportunities. 

You can sign-up and consent to receive digital or other forms of communication from us.

Checking you are who you say you are

‘Open Verified’ is a layer of additional personal verification that helps us know that you are who you say you are. It is a sub-group within Open’s registered inclusive insight community.  This reduces the risks of research fraud and increases our confidence in the insights that we provide our clients. 

Open Verified members of the Open Insight Community are given priority over non-verified members when we are selecting respondents for paid research. It opens up your access to be involved in some of our most interesting research projects, especially those that are more involved and therefore offering more significant incentives, or those with large, global brands that require this level of validation as a minimum.  

To become Open Verified, you will need to share a valid government-provided photo identity document or similar. We have a range of documentation options to suit people from different backgrounds and with differing identity documents or access needs.  This makes this process as easy as possible for you and as reliable as possible for us. 

We do not hold details or images of your identity documents. Having sighted them, and validated that they are legitimate, we simply annotate your contact file with the Open Verified status. This protects the quality of our research from fraudulent participants and ensures that you get access to the highest value and most impactful research opportunities that will only be offered to pre-Verified community members. 

What data do we share? With who?

Anonymised and/or aggregated research findings will be shared with clients, and depending on the project, in public reports. 

Your personally identifiable data will only be shared privately with people outside of Open team members (staff and contractors) as required for research purposes. These may include:

  • Transcription or translation tools or individuals supporting us with translation or transcription
  • Online platform providers (such as Zoom, DScout or other research enabling platforms)
  • Data analysis tools
  • Venue providers we may be using for an in-person research session (our office partner, client office administration or external office administrative staff)
  • Collaborative trusted research partners we are working with on the specific project 

 

We ensure that our partners also comply with our privacy policies. We have vetted and selected them on the basis of their trusted services and approach. 

Any personally identifiable information including data, images or video would not be used in the public domain without your explicit consent.  We will never lease, distribute, or sell your personal information to third parties unless we have your express permission, or the law requires us to. We will always let you know if we are required to share your personal information for any reason.

Your rights to your data

You have the right at any time to request a copy of the information we hold about you or to request that we correct, delete, restrict the use of any data that you have given us. 

We will respond to you within 5 business days of receiving such a request to acknowledge receipt and the actions we are taking and will contact you with confirmation of completion of any corrections or deletion within 20 business days . If for any reason you are unhappy with the way that Open Inclusion has processed your personal information request, you have the right to lodge a complaint with a supervisory authority. See Data protection: Make a complaint – GOV.UK

You may also withdraw your consent for the data to be used in research findings. We will usually note a specific date up until which you can do so for each project. This date is prior to the point in time where the data is included in the final research reporting and delivery to the client. 

If you would like to discontinue receiving any digital communications, you can update your preferences at any time by using the “Unsubscribe” link found in emails, by contacting us at contact@openinclusion.com or using the information in the “Contact Us” section of this website.

Cookies and how we use them

Cookies are small files placed on your computer’s hard drive. Cookies enable our website to identify your computer as you view different pages on www.openinclusion.com.

We may use cookies to:

  • Analyse our web traffic using an analytics package such as Google Analytics. 
  • Use aggregated usage data to help us improve the website structure, design, content and functions
  • Identify whether you are signed in to our website
  • Test content on our website
  • Store information about your user preferences when browsing our site
  • Recognize your user preferences when you return to our website

 

Cookies do not provide us with access to your computer or any information about you other than that which you choose to share with us. To learn more about cookies and how they are used, visit All About Cookies.

Children’s privacy

Open Inclusion’s Insight Community is not available to anyone under the age of 18.

In case we discover that a young person under 18 years of age has provided us with personal information on the community insight platform, we will immediately delete this information from our records. The registration form excludes people whose date of birth identifies them as under 18 years old. 

Occasionally we conduct specific research that includes children or adolescents under 18. 

On such occasions we recruit specifically for that project and hold information about the individual in line with the privacy policy as above for the minimum required duration of the research. We then delete all personally identifiable information from all databases. Contact details held would be a parent or guardian’s email / phone not the child’s, and consent would require that of both parent/guardian and child. 

Privacy policy accessibility

This site has been built to be compliant with W3C standards (WCAG 2.1 AA) for HTML and CSS. The site when tested displays correctly in current browsers and uses standards compliant HTML/CSS code. It has also been tested by people with a range of disabilities including those who use assistive technologies, perceive content or learn differently, and those who engage using adapted operating system settings.   

However we understand sometimes things are not clear enough and accessibility can be very specific to your setup. If you have any difficulties accessing or understanding the content on this page, please email us at contact@openinclusion.com.